Yesterday we had some follow ups for Daniel's ongoing medical condition. The news is pretty much status quo. Perfect right kidney, swollen left kidney, and over-sized bladder. I'm coming to the realization that that is what they expect to see and that is about as good as it will get. Since his left kidney can never actually take a few days, weeks or months off to heal, like a sick person could, it won't actually have the chance to heal completely.
Personally I thought it looked a tad better than before and the doctor agreed that it might be a smidge better. As for Daniel's bladder, basically we're in the "he just needs to grow" stage. Daniel needs to grow bigger and older and have an understanding of a bladder and the fact that he just can't speed pee to get back to his toys.
I can hear the choruses of "Good luck with that one" now!! Believe me, I know!!
They have one more large sedated test to do, which they have mentioned several times. The doctor finally agreed that we should schedule it in the New Year or early spring "for completeness" in his words. If they don't find anything unusual, which they don't expect to, then we might actually be DONE, as in released from the urologist!!
Are we done with the issue entirely? No way.
We will have to be diligent in continuing to potty train and getting Daniel to understand his issues. He still leaks in between potty breaks (unless highly motivated) and we are trying to curtail that without so much bribery now. We will have to watch him for urinary tract infections and teach him to recognize the signs as he begins to want privacy from us (which we see starting already). Daniel will have to have regular blood pressure check ups and we'll have to monitor his kidney on some level, maybe once a year.
Thanks for all the prayers and support!! I'll update about the next test when we get dates.
6 comments:
Glad to hear Daniel is maintaining the status quo, so to speak. I know this is a long road you have been on, and you continue to travel it, but the fact that it is not getting worse is very good news.
Hang in there girl. Sounds like you are on the right track but it's just going to take time.
So glad to hear that Daniel's appt went ok!!! He sounds like a little trooper! Have a fabulous time at your sister's wedding this weekend! She picked a beautiful time of year to get married....this weekend is also our wedding anniversary as well :)!! Can't wait to see the pictures!
Poor baby. ..these tests are always so hard for them!! Daniel will get it (the holding of his bladder, thing) in his own time. Glad to hear he is doing so well, though! We have GOT to meet!
You are doing a great job managing his condition. Glad it is going well!
Glad to hear this report. I am sorry he has to go through all of this. It sounds like things will improve with time. And boy are you right about the speed pee thing...that is such a boy thing!
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